Laqueisha's story: living with RHD

Professor Jonathan Carapetis and Laqueisha on a recent visit to the END RHD CRE

Laqueisha was just five years old when she was diagnosed with rheumatic heart disease and sent on a 5,000km return trip to Perth for major heart surgery.

Surgery is a scary prospect for anyone, but for a young child, it's especially terrifying.

Coming from a remote community, the idea of leaving friends and family and relocating to a hospital in the city for an unknown amount of time, made it even harder for Laqueisha.

Now aged ten, Laqueisha can still vividly recall her fear before being taken into surgery.

“When they put the mask on me, I was screaming. It was really hard to do it,” she says.

Despite being so young, Laqueisha remembers how troubling her diagnosis and surgery was for her whole family.

“It was pretty sad for my family when they found out I had rheumatic heart disease. They didn’t want me to be like this, and they didn’t know rheumatic heart [disease] at the time,” she says.

Fortunately, Laqueisha's surgery went well and she was able to return home.

However, having rheumatic heart disease has fundamentally altered the course of her life.

Like almost all kids living with RHD, Laqueisha must have a long-acting penicillin injection every 21-28 days, indefinitely, to ensure her condition does not deteriorate.

“The hardest part of living with rheumatic heart [disease] is to keep having the injections. It makes me feel really sad and sometimes mad. It’s really, really, hard,” she says.

Living with RHD means Laqueisha cannot be as active as her peers, and she struggles with not being able to do what other kids her age can.

“I can’t run, and I can’t be able to play basketball properly, which is my favourite sport,” she says.

But for someone who has gone through so much, Laqueisha is a bundle of energy. She is still only young, but she has already committed to a future of helping kids going through similar situations to her.

“My dream in the future is to become a nurse and to be able to help other kids. They might have the same thing as me. I want to be able to tell them how to make it easier for them,” she says.

But her ultimate dream is that, one day, RHD no longer affects kids like her.

This story originally appeared in 'The cost of inaction on rheumatic heart disease in Australia,' published by the END RHD CRE in December 2018. Read the report in full here.